Scared

MS is one of those diseases that kinda sneaks up on you. Take today, for instance. My symptoms in my right side have been pretty wonky, but I expect that because I am hormonal (MS goes crazy before your period). As I'm driving tonight, I notice that now my right calf is trembling as I accelerate or brake. Great. What the hell does that mean? Is my medication not working? Is my disease progressing? AM I GONNA BE ABLE TO WALK TOMORROW? That's pretty much how quickly my mind starts going. No matter how many people I have around me, no one knows what this is like, unless you have MS yourself.

I know I should be grateful that I don't have a terminal illness. I know I shouldn't be scared. I know I shouldn't think too far into the future. Guess what? I'm NOT grateful that I don't have something worse!! As far as I'm concerned, God can have this stupid disease back because I sure as hell don't want it! I'm freaking scared almost all the time of how the hell this disease is going to progress and how big of a fucking burden I'm going to be to my husband and family. I'm scared as hell that I won't be able to care for myself, let alone my child (when we have one). I'm scared as hell that I'm going to pass this disease on to them (I understand there's no proven genetic link, but it still is something I have to think about). This is one reason why I contemplated only having one child because I don't know what's going to happen.

The reality is, no one knows either. I hate how MS has made me so very skeptical of everything. My belief in God, my faith in my doctors, my belief in my own ability to heal. I just want to go on and live my life MS-free. I want to be free of this worry. I want to stop living in fear of my own body. I want to live up to the very positivity I preach to the clients I work with.

For now, I am sad and angry. Sad and angry. Quite a combination?

L